The Boy in the Bubble: Spirit of boy in bubble lives on at school 

A lot of people have heard about the Boy in the Bubble, the story of David Demaret who suffered from SCID, or severe combined immune deficiency… Monday April 27, 1998 By CATHY GORDON / Houston Chronicle THE WOODLANDS, Texas – Schools have been named after legendary scholars, renowned scientists and…


REPORT: Healthcare in Africa 2013-The Patients Perspective

Cape Town, South Africa, February 20-21, 2013 SECTION 1: THE EVENT Introduction Organised by the Economist, Healthcare in Africa gathered180+ influential healthcare stakeholders from government, providers, suppliers and patient groups to explore the key issues around healthcare systems in the continent. The 2013 summit focused on identifying healthcare solutions designed…


REPORT:EURORDIS Summer School for Patient Advocates in Clinical Trials and Drug Development

29 June 2012 SECTION 1: THE EVENT Introduction A capacity building programme for patient representatives involved at the European level in the development, approval, information and access to orphan drugs, paediatric drugs and advanced therapies. There were 37 attendees at the training from 17 countries, representing 28 rare diseases. Ms…

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