Ethan’s story – Living with PID

Wow time really flies by so quickly. My precious little angel will be 6 years old this year. I found a meaning for my little boy’s name which I think describes him better than I could. Ethan means strong, optimistic, solid, enduring and permanent. Ethan was born on the 17th…

Gaby’s Story

by Joy Rosario Gabrielle Rosario (Autosomal Recessive Hyper IgM) Gabrielle is 38 and works in the mobile health sector (MHealth) in Johannesburg. She was first diagnosed at the age of three. She had experienced recurrent middle ear infection (otitis media) from the age of 15 months and had her first of…

Joshua’s Story

by Esté van Rensburg, Port Elizabeth, Eastern Cape Representative Joshua Benjamin van Rensburg was born on 24 February 1999 and was a relatively healthy baby except for having asthma, sinusitis and regular bronchitis.  At the age of four our ENT doctor removed his tonsils.  Nebulizers were often used on a regular…

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