At present the main treatment of PID is an infusion, either by intravenous (in the vein) or by sub-cutaneous (under the skin), of fractionated blood products, alongside high and constant doses of antibiotics. Fortunately, with proper medical care, many patients live full and independent lives.

In the event of a reaction, or adverse event the treating doctor needs to report this. The reporting form is available on request from [email protected] Click here for advice on reporting from our Medical Advisory Panel (MAP).

There have been children cured with Bone Marrow Transplants and Gene Therapy.

Recent Updates

Prevention of Infections During Primary Immunodeficiency

Published by Oxford University Press on behalf of the Infectious Diseases Society of America. Below is the full Prevention of Infections During Primary Immunodeficiency article for download. Summary of the Article Because infectious diseases are a major source of morbidity and mortality in the majority of patients with primary immunodeficiencies (PIDs), the application…

Immunoglobulin therapy

Page Contents1 What is immunoglobulin replacement therapy?2 What is the difference between intravenous and subcutaneous immunoglobulin?3 Will I be given the choice between intravenous or subcutaneous immunoglobulin?4 What is in the immunoglobulin?5 Why do I need immunoglobulin?6 What tests do I need to have before starting immunoglobulin?7 I heard that some people…

Gene therapy

Page Contents1 What is gene therapy?2 How does gene therapy work?3 How safe are vectors?4 What are the criteria for treating PIDs with gene therapy?5 Gene therapy clinical trials6 What have scientists learned from clinical trials so far?7 What is the future of gene therapy for PIDs?8 Where are the…

Gene Therapy Links